GenerationR – The importance of involving children and young people in research

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• Format Videos
• Language/s English
• Target Audience Schools, Further education, Self-directed learning
• EBM Stage 0 - Why EBM?
• Duration >15 mins
• Difficulty Introductory

Key Concepts addressed

• 3-2a Do the outcomes measured matter to you?
• 2-3f Confidence intervals should be reported

Details

3/3, 22-min video at the launch of GenerationR, a network of young people who advise researchers.

This is the third of three videos made at the 2013 launch of GenerationR (http://generationr.org.uk/), a network for children and young people who advise researchers who wish to do clinical trials involving children and young people.

In September 2013, the NIHR Medicines for Children Research Network ran a groundbreaking event: Generation R. Generation R was conceived, written and run by their Young Person’s Advisory Group. The event sought to engage the life-sciences industry in the importance of children’s research and the invaluable role young people have to play in its development.

Young people Mahari, Tom, Shani and Georgia first interrogate Simon Denegri, National Driector of Patient and Public Involvement for the National Institute for Health Research.

At 12:18 minutes, Georgia interviews Sylvia Galleno, mother of a very prematurely born daughter and how she subsequently became involved in research to document the experiences of others who had experienced the birth of very premature children.