Psoriasis patients poorly served by research

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• Format Audio, Texts
• Target Audience Self-directed learning
• Duration <5 mins
• Difficulty Introductory

Key Concepts addressed

• 2-1a Comparison groups should be similar
• 2-1c Comparison groups should be treated equally
• 3-2a Do the outcomes measured matter to you?
• 1-2e Comparisons are needed to identify treatment effects

Details

‘Few trials involved comparison of different options or looked at long-term management. The duration of studies is unconvincingly brief in the context of a disease of potentially near life-long chronicity. We seem to know reliably only that our treatments are better than nothing at all. Tellingly, researchers have completely ignored patient experience, views, preferences, or satisfactions.’

R Jobling, Chairman, Psoriasis Association.

Jobling R. Therapeutic research into psoriasis: patients’ perspectives, priorities and interests. In: Rawlins M, Littlejohns P, eds. Delivering quality in the NHS 2005. Abingdon: Radcliffe Publishing Ltd, pp53-56.

Read more in: Who decides what gets studied?